Presentations
Collections of presentations from annual meetings, listed by year
(This page is still in progress)
52nd Annual Meeting, 2024, Valencia, Spain
(jointly with 56th Annual Meeting of ESPN)
Program, 52nd Annual Meeting of EWOPA, Valencia, Spain, 24-27 September 2024
Alicia Paessler, Quality of Life of Children Receiving Multi-Solid-Organ Transplants is Excellent: Results from the
'UNIQUE' Study
Arran Wheatley, Transitioning an adolescent receiving dialysis and awaiting kidney transplantation:
need for improved provision of healthcare support
Claire Gaymer, Hai Liang Tan, Improving transition: exploring the perspective of healthcare professionals working
with young adolescent kidney transplant recipients
Dirk Bethe, Update on adherence – understanding the challenge, supporting the patient
Ellen White, “But she screams until I give her chocolate. I can’t just say No!” - When lack of
parental boundaries impact the management of children with CKD.
Ethy Hendriks, Rebuilding trust: Navigating strained pasts, medical concerns and dialysis care
EWOPA Coordination Group, Business Meeting 2024
Femke Glaap-Roeven, Mind the gap'; transitional care 2.0 in Radboudumc Amalia Children's Hospital,
Nijmegen, Netherlands
Janneke Kuiper, Navigating the ethical and social complexities of genomic diagnostics: an exploration
of current and future use in pediatric nephrology clinical practice
Jérôme Harambat, Disparities in access to transplantation and transplantation outcome
Ji Soo Kim, Stephen Marks,Converting qualitative data on psychosocial factors influencing access to
paediatric kidney transplantation to quantitative output with patient and public involvement
Jo Woodland et al., The multi-disciplinary approach to transition and the challenges faced when covering
a large geographical area and the engagement of young people
Karina Gonzalez, Gema Ariceta et al., Caregivers’ burden in pediatric rare kidney diseases. Description based on clinical cases
Laura Núñez, Victor Perez et al., From a protected environment to the reality of the adult world:
our experience in transition
Linda Sprunken, Nicole Thoonen, Back to School After a Kidney Transplant: Challenges and Support
Lore Willem, Elke De Bruyne, The psychological impact of CKD on parents: a theoretical overview and examples
from daily clinical practice
Luisa Klein, Sandra Brengmann, Introducing an Information booklet/Childrens Book for children
with kidney diseases
Maaike Heijmans-de Bruijn, Transitional care between hospital and home as a solution for a boy with
severe primary hyperoxaluria type 1 born in the Dutch Caribbean; a case-based story
Matteo Guarnaroli, Dietary regimen and physical activity in pediatric subjects affected by solitary kidney:
a cross-sectional study
Pearl Pugh, Caroline Anderson, Support children and young people with CKD through early dietary intervention
upskilling workshops
Rita Scholtens, Procedural comfort in Amalia Children's Hospital Nijmegen
Sandra Brengmann, Luisa Klein, Case report about a 2-year-old Syrian girl and her treatment affected by several
factors through immigration and intercultural differences
Seha Saygili, Challenges in Transition: Readiness and Medication Adherence Assessment in
Adolescent Nephrology Care
Vanessa Nenner, Julia Thumfart, Palliative Care in Paediatric Nephrology – The perspective of children and
adolescents with chronic kidney disease, their families and their carers
51st Annual Meeting, 2023, Leuven, Belgium
Program, 51st Annual Meeting of EWOPA, Leuven,Belgium, 8-10 June 2023
Amaryllis Van Craenenbroek,Transition from the perspective of the adult nephrologist
An Desloovere, Difficult eater pre-and post kidney transplant
Cooper, Kenward, Taylor, Psychosocial MDT preparing families for KTx
Dirk Bethe, EWOPA Business Meeting 2023
Elke De Bruyne, Living loss in parents of children with CKD
Ellen White et al., An infant with stage 4 CKD and Bardet-Biedel 7 - a learning experience
Jacqueline Knoll, Ciliopathy outpatient clinic
Jenny Prüfe, Barriers to the successful health care transition of patients with kidney disease
Katrien van der Vaerent, Diet restrictions in CKD, what is new
Laura Vandenbosch, An Advanced Perspective on Coping with Social Media in Adolescence
Laure Collard, Transition, from the perspective of the Pediatric Nephrologist
Lore Willem, Illness-related Parental Stress and Quality of Life in Children with Kidney Diseases
Pascal Borry, Human genetics, ethics and policy, An introduction
50th Annual Meeting, 2019, Helsinki, Finland
Program, 50th Annual Meeting of EWOPA, 2019, Helsinki
Nicole Parish, Considering Best Practice at Psycho-Social Meetings for Children with Renal Disease
Beverly Magowan, Our Experience Empowering Children and Young People to Self Cannulate AV fistulas
Chris Reid, EWOPA at 50
Timo Jahnukainen, Infants with ESRD – challenge and pitfalls
Lore Willem, Interventions for anxiety in pediatric care
Nijmegen Team, Invitation to Annual Meeting (cancelled , due to pandemic)
Anna Santamäki, Medical Treatment From the View of the Ward Pharmacist
Nienke Maas-van Schaaijk, Medication adherence in children with chronic kidney disease: the role of self-efficacy
and executive functioning
Jenny Prüfe, Mental health following paediatric kidney transplantation
Nottingham University Hospital Youth Service, Support, Empowerment, Opportunity
Arvind Nagra, PEEER Project
Tania Sviridova, Psychological features of children and adolescents with chronic kidney disease
Elke De Bruyne, Stress, anxiety and depression in parents of children with CKD & its correlation with protective
behavior
Jetta Tuokkola, Supporting oral eating skills in children on dialysis
Nancy Kamphuis-Serpa, Trauma-informed care: Is being aware enough?
Francesco Emma, What happens to a child with renal failure?
49th Annual Meeting, 2018, Visegrad, Hungary
Jenny Prüfe, Why can't you love me?
Shahid Muhammad, Using social media to highlight and manage rare and long-term health conditions
in young people
Ivett Jakab, The rehabilitation program of organ transplanted children and adolescents in Hungary
Anita Engelen, Psychosocial impact of pediatric renal failure on siblings
Maria Angster, Psychological care of ESRD and transplanted patients
Heidi Ramsey, Promoting patient engagement and nurse empowerment in a dialysis unit
Dirk Bethe, Preparation from early on and individual timing of transfer: A need-adapted transition program after
pediatric kidney transplantation
Colleen O'Neill, ‘Organised Chaos’ - Adolescents perspectives of the impact of Chronic Kidney Disease on their
psychosocial wellbeing
Maria Angster, Let's share our stories from the edge
Diana Jurdi, Interactive use of ecomaps and genograms in pediatric end stage kidney disease:
illustrative case presentations
Carmon Barton, Impact of transition between renal replacement modalities
Atinuke Ademefun, From HD to PD - A patient’s journey from a mother’s perspective
Marta Molnar-Varga, Executive and intellectual functions of children and adolescents with chronic kidney disease:
state of the art and the implications for practice
Chris Reid, EWOPA Business meeting
Helsinki Team, Invitation to Annual meeting 2019
Shahid Muhammad, Electronic patient records, library services, MDT meetings - is it not time
to integrate primary care for the better?
Carmen Barton, Developing new models of education in paediatric haemodialysis unit?
Nienke Maas-van Schaaijk, Cognitive and psychosocial functioning in small children with end stage renal disease
before living kidney transplant
Katie Naylor, Benefits of a Home Therapies Clinical Nurse Specialist
Nele Feddersen, Adherence in paediatric renal transplant recipients and its effects
48th Annual Meeting, 2017, Glasgow/Scotland
Jointly with the 50th Annual Meeting of the European Society for Paediatric Nephrology (ESPN)
Dirk Bethe & Christopher Reid, History and current state of psychosocial care in European paediatric nephrology
Lore Willem , To transplant or not to transplant
Grainne Walsh, The impact of transplantation on siblings
Anna Tornivuori, A virtual hospital, an e-health tool for adolescents with severe chronic health conditions
Robert Novo, Transition from paediatric to adult nephrology units in France
Tracy Daglar, To safeguard or not to safeguard
Jenny Prüfe, Lars Pape, Martin Kreuzer, Survey on managing transition in transplant recipients Europe
Charlotte Van Herzeele, Elke De Bruyne, Stress, anxiety and depression in parents of children with chronic kidney
disease
Ellen Samuel, Renal transplantation for a child with ASD
Charlotte Van Herzeele, Elke De Bruyne, Psychological wellbeing of children with CKD
Ifaf Asghar, Liz Hunter, Patients' experience of the transplant journey
Stacie Bowden, Parental experience of paediatric kidney transplantation
Marja Kenselaar, Marjoleine Van Der Zijde, Outpatient Nephrotic Syndrome Consultation
Jenny Prüfe, More than just IQ - specific neurocognitive difficulties in children with chronic renal failure and
kidney transplantation
Nabil Melhem et al., Medication non-adherence is a leading modifiable cause for renal graft loss in childhood –
a large centre study
Fionna Bathgate, Making difficult decisions together
Maria Scanes, Living related renal transplantation from grandparental donors to paediatric recipients
Sophie Velleman, How to work effectively as an MDT
Marjukka Miettinen, How the Finnish kidney and liver association supports renal sick children, adolescents
and their families?
Helena Öborn, Health-related quality of life in children with chronic kidney disease
Malcolm Robinson, Harvey's gang
Nancy Kamphuis-Serpa Ethical dimension in pre-transplant counseling and decision-making
Hasmik Tadevosyan, Accompanying services within the Interdisciplinary Approach, Direct Aid Armenia
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