Presentations - Helsinki 2019
Here are some of the presentations from the Helsinki meeting in 2019
Presentations from Helsinki 2019
50th EWOPA Programme - Final.doc (42.0 kB)
Best Practice at Psycho-Social Meetings. Nicole Parish.pdf (1,636.8 kB)
Empowering Children and Young People to Self-Cannulate AV fistulas – Beverley Magowan.pdf (629.0 kB)
EWOPA at 50 - Chris Reid.pdf (8,823.5 kB)
Infants with ESRD – challenge and pitfalls. Timo Jahnukainen.pdf (2,281.9 kB)
Interventions for anxiety in pediatric care. Lore Willem.pdf (1,208.7 kB)
Introduction to EWOPA 2020 Nijmegen.pdf (1,751.9 kB)
Medical treatment from the view of the ward pharmacist. Anna Santamaeki.pdf (3,318.0 kB)
Medication adherence - self-efficacy and executive functioning. Nienke Maas.pdf (1,440.5 kB)
Mental health following paediatric kidney transplantation. Jenny Pruefe.pdf (2,713.6 kB)
PEEER Project. Arvind Nagra.pdf (9,109.4 kB)
Supporting oral eating skills in children on dialysis. Jetta Tuokkola.pdf (273.6 kB)
Trauma-informed care - is being aware enough. Nancy Kamphuis-Serpa.pdf (1,111.7 kB)
What happens to a child with renal failure. Francesco Emma.pdf (4,564.5 kB)
Presentations - Hungary 2018
Here are some of the presentations from the Hungary meeting in 2018
Presentations from Hungary 2018
Benefits of a Home Therapies Clinical Nurse Specialist - Katie Naylor.pdf (711.1 kB)
Developing new models of education in a paediatric haemodialysis unit - Carmen Barton.pdf (435.6 kB)
Electronic Patient Records, Library Services and MDT Meetings - Shahid Muhammad.pdf (589.6 kB)
EWOPA 2019 - Helsinki 23-25 May 2019.pdf (804.3 kB)
EWOPA BUSINESS MEETING - Chris Reid.pdf (498.0 kB)
From HD to PD, a patient’s journey from a mother’s perspective - Atinuke Ademefun.pdf (534.5 kB)
Impact of transition between renal replacement modalities - Carmen Barton.pdf (837.8 kB)
Lets share our stories from the edge - Workshop - Maria Angster.pdf (725.2 kB)
Organised Chaos’ Presentation - Colleen ONeill.pdf (2,806.2 kB)
Preparation from early on and individual timing of transfer - Dirk Bethe.pdf (1,334.8 kB)
Promoting patient engagement and nurse empowerment in a dialysis unit - Heidi Ramsay.pdf (277.3 kB)
Psychological care of ESRD and transplanted patients - Maria Angster.pdf (1,352.9 kB)
Psychosocial impact of pediatric renal failure on siblings - Anita Engelen.pdf (1,950.9 kB)
Presentations - Glasgow 2017
Here are some of the presentations from the Glasgow meeting in 2017
Presentations from Glasgow 2017
Accompanying services within the Interdisciplinary Approach - Tadevosyan H.pdf (363.3 kB)
Executive functioning following paediatric kidney transplantation - Hartmann M.pdf (725.2 kB)
Health-related quality of life in children with chronic kidney disease - Oeborn H.pdf (686.7 kB)
How to work effectively as an MDT - Velleman S.pdf (613.0 kB)
Living related renal transplantation from grandparental donors - Scanes M.pdf (296.7 kB)
Making Difficult Decisions together - Bathgate F.pdf (651.8 kB)
More than just IQ - Pruefe J.pdf (703.4 kB)
Outpatient nephrotic syndrome consultation - ven der Zijde M, Kensellar M.pdf (769.3 kB)
Parental Experience of Paediatric Kidney Transplantation - Bowden S.pdf (470.5 kB)
Patients experience of transplant - Asghar I Hunter L.pdf (913.2 kB)
Psychological wellbeing of children with CKD - Van Herzeele C, De Bruyne E.pdf (892.9 kB)
Renal Transplantation for a child with ASD - Samuel E.pdf (227.0 kB)
Survey on managing transition in transplant recipients in Europe.pdf (640.8 kB)
The Impact of Transplantation on Siblings - Walsh G.pdf (681.6 kB)
To Safeguard or not to safeguard - Daglar T.pdf (551.7 kB)
To transplant or not to transplant - Willem L.pdf (903.8 kB)
Transition from Paediatric to Adult Nephrology Units in France - Novo R.pdf (2,396.5 kB)
Virtual Hospital Project Finland - Tornivuori A.pdf (4,894.1 kB)
Presentations - Heidelberg 2016
Here are some of the presentations from the Heidelberg meeting in 2016
Presentations from Heidelberg 2016
C.Hardy. Renal residentials.pdf (1,697.7 kB)
C.Hardy. What matters to me.pdf (1,568.2 kB)
D.Hilton. The Impact of Residentials.pdf (2,418.7 kB)
EWOPA 2016 Heidelberg - Programme.pdf (194.8 kB)
K.Pfeil. Physical Activity in Pediatric Patients after Kidney Transplantation.pdf (4,630.3 kB)
L.Koerner S.Brengmann. Holiday camps for children and adolescents.pdf (2,127.8 kB)
N. Kamphuis-Serpa. Family Donation With a Young Child, What do the Families Need.pdf (743.7 kB)
W.Geense, J.Knoll. Online Support Program for Parents of Children with CKD.pdf (1,004.5 kB)
Presentations - Lille 2015
Presentations from Lille
ASD and CKD - J Clothier and S Johnson, London, UK.pdf (2,012.0 kB)
Health behaviour of adolescents - G Holst, Hamburg, Germany.pdf (1,817.3 kB)
Like, Share, Follow - communication with social media - S Jepson, Nottingham, UK.pdf (2,056.2 kB)
Medication adherence in kidney recipient after transition - S Belaiche, Lille, France.pdf (799.8 kB)
Multiple perspectives-collaboration or competition - C Dempster, London, UK.pdf (356.1 kB)
Parents As Artists - R Kachere, London, UK.pdf (9,255.1 kB)
QoL after transplantation - E De Bruyn, Ghent, Belgium.pdf (5,185.5 kB)
Supporting parents - H Tadevosyan, Yerevan, Armenia.pdf (786.9 kB)
Supporting Play Specialist Development in Japan - C Hardy, Nottingham, UK.pdf (2,743.9 kB)
Presentations - Porto 2014
Programme and Abstracts
Programme and Abstracts from Porto
Cognitive development in children with renal failure - J Pruefe.pdf (36.5 kB)
Ethical issues in transplantation for mentally disabled children - L Willem.pdf (67.4 kB)
Ethnic minority donors in Bristol UK - S Muhammad.pdf (80.1 kB)
EWOPA 2014 program.pdf (87.4 kB)
How to build the best paediatric hospital - A von Schantz.pdf (49.9 kB)
Intensive transplant preparation work - L Bayliss.pdf (41.3 kB)
Little babies and big problems - J Pruefe.pdf (32.9 kB)
Looked-after teenager-dialysis, transplant & beyond - C Davis.pdf (45.7 kB)
MDT working in Armenia - T Tadevosyan.pdf (83.5 kB)
Meaning of Education for Children on dialysis - P Amorim.pdf (67.9 kB)
Messy play with children on haemodialysis - V Hoque.pdf (63.6 kB)
Psychosocial treatment of CKD - what could we do beter - J Heath.pdf (74.6 kB)
QoL, sexual health, and mental well-being after transplantation - J Tainio.pdf (57.7 kB)
Role of Social Worker - J Gagne.pdf (52.0 kB)
The sibling voice in transplantation - G Walsh.pdf (70.3 kB)
The value of Individual-to-Group School projects - R Kachere.pdf (65.0 kB)
Transition from child centred to adult centred care.pdf (79.2 kB)
Transplant Preparation-Involving children, young people and families - C Davis.pdf (52.3 kB)
What makes complementary medicine alternative part 1 - N Ozyilmaz.pdf (61.3 kB)
What makes complementary medicine alternative part 2 - D Wallace.pdf (66.4 kB)
Presentations - Rotterdam 2013
Final Programme and Presentations
Programme and Presentations from Rotterdam
Adolescent Brain Inside Out-Communicating with Young Adults - Y van Sark.pdf (791.0 kB)
An Interactive Information Day to Help the Transition Process - H Steward.pdf (443.5 kB)
Borderline Personality Disorder Contributing to Early Graft Loss - J Stojanovic.pdf (763.1 kB)
Camp Cool for Adolescents with ESRD - J Sattoe.pdf (2,505.2 kB)
Career Orientation and Counselling - M van der Putten.pdf (891.5 kB)
Final programme EWOPA.pdf (285.9 kB)
Self-reported Quality of Life and Psychological Adaptation - J Heath.pdf (116.2 kB)
The Kidney Team at Home - S Ismail, A Luchtenberg.pdf (1,202.1 kB)
The Paediatric Kidney Net - J Knoll.pdf (1,024.1 kB)
Transition procedures and transfer age in German pediatric renal units - D Bethe.pdf (379.3 kB)
Presentations - Hamburg 2012
Abstracts and Presentations
Abstracts and Programme from Hamburg
Presentations from Hamburg
Adherence-responsibilities and ethical tensions - Joe Mellor.pdf (2,236.1 kB)
Disorders of sex development - Anja Lehnhardt.pdf (5,611.0 kB)
Engaging young adults in transition - Clare Nottage.pdf (1,789.2 kB)
Family education programme for CRF - Marcus Benz.pdf (4,369.2 kB)
HUS outbreak - Markus Kemper.pdf (5,508.3 kB)
I\'m angry but I can\'t remember why - Victoria Hoque.pdf (250.4 kB)
The Future of EWOPA.pdf (275.0 kB)
The need for peer support in paediatric nephrology - Jenny Pruefe.pdf (2,529.1 kB)
Presentations - Nottingham 2011
Abstracts (below) and Presentations
A Tribute to Evelyn Reichwald
Abstracts from Nottingham
Collaborative working for the child with complex family needs..pdf (61.5 kB)
Coping with stress in parents of children after renal Transplantation.pdf (62.7 kB)
Developments in Transplantation.pdf (56.9 kB)
Donal ODonoghue biography.pdf (60.4 kB)
Feeding Support Group.pdf (52.9 kB)
It is life threatening but I dont mind.pdf (59.2 kB)
Job-Related Integration for Adolescents with Chronic Renal Failure.pdf (61.9 kB)
Multidisciplinary support of children with chronic renal conditions.pdf (55.7 kB)
Painful Procedures - Helping Children Cope.pdf (51.0 kB)
Practical tools - Sharing Knowledge with Toolkit and book.pdf (68.5 kB)
Practice Standards for Paediatric Renal Social Workers.pdf (55.2 kB)
Qualitative Data from the GCQ Quality of Life Project.pdf (52.4 kB)
Team Working in Nottingham.pdf (46.0 kB)
The British Kidney Patient Association.pdf (34.6 kB)
The Swiss Paediatric Renal Registry (SPRR) 1970-2010.pdf (62.8 kB)
Transition to Adult Health Care - Current Discussions.pdf (54.3 kB)
Working across boundaries - support for renal unit in Sudan.pdf (49.9 kB)
Presentations from Nottingham
Addressing the needs of young people in adult renal services. Matt Tomlin.pdf (147.6 kB)
Collaborative working for the child with complex family needs. Munira Asaria.pdf (79.8 kB)
Developments in Transplantation. Keith Rigg.pdf (158.9 kB)
Dialysis is easy, its the feeding thats difficult. Pearl Pugh.pdf (2,305.2 kB)
Novel ways of achieving dietary adherence. Pearl Pugh.pdf (518.9 kB)
Practical tools...sharing knowledge. Aline Kalisvaart, Madelon Kleingeld.pdf (2,214.4 kB)
Practice Standards for Paediatric Renal Social Workers. Suzanne Batte.pdf (49.2 kB)
Qualatative data from the GCQ project. Katherine Hayes.pdf (788.8 kB)
Renal Services and Young People. Donal ODonoghue.pdf (4,150.8 kB)
Team working in Nottingham - An evaluative study. Shelley Jepson.pdf (1,265.4 kB)
Transition to Adult Healthcare, Current Discussions. D.Bethe , E.Reichwald-Klugger.pdf (529.0 kB)
Working Across Europe. Dot MacKinlay.pdf (112.8 kB)
Working together -making things happen. Ki Lindqvist.pdf (3,969.1 kB)
Young people’s experiences of renal replacement therapies. Francesca Wells.pdf (968.4 kB)
Presentations - Helsinki 2010
Below you can download a selection of presentations from the 2010 conference in Helsinki
ESRD and TX, economy and societal expectations.pdf (126.4 kB)
Ethical Consideration in CKD and Transplant.pdf (99.6 kB)
Facilitation of home based pd in infants-safety first.pdf (435.9 kB)
Infants with ESRD - challenges and pitfalls.pdf (2,974.4 kB)
Neurodevelopmental outcome of pediatric kidney transplant recipients.pdf (695.5 kB)
Psychosocial aspects of adolescents on long-term programmed dialysis.pdf (263.9 kB)
QOL in adult survivors of ped kidney Tx.pdf (142.3 kB)
Quality of life and disease acceptance in adult patients with ESRD since childhood.pdf (252.0 kB)
School performance in children with steroid sensitive nephrotic syndrome.pdf (464.4 kB)
Validity of coping measures in the paediatric nephrology setting_Literature review.pdf (514.8 kB)
Presentations - Leuven 2009
Below you can download the presentations and see photos from the 2009 conference in Leuven
A psychological approach within 4 children of different ages - Guittard.pdf.pdf (1,696.6 kB)
Communication before and with chronic renal failure - Jean Steyaert.pdf.pdf (4,218.4 kB)
Cystinosis - adherence to cysteamine treatment in Benelux - Schurmans.pdf.pdf (259.5 kB)
Education for children in renal replacement therapy - Govaerts.pdf.pdf (310.6 kB)
Ethical aspects of genetic diagnosis - Devriendt.pdf.pdf (1,154.7 kB)
EWOPA 2009 Programme.pdf (156.8 kB)
Family education programme for nephrotic syndrome - Benz.pdf.pdf (4,653.0 kB)
How do patients and their families like to access dietary infomration - Janes.pdf.pdf (407.3 kB)
Late social rehabilitation after kidney transplantation in childhood - Gagnadoux.pdf.pdf (310.2 kB)
Neurocognitive functioning in school-aged cystinosis patients - Besouw.pdf.pdf (164.1 kB)
Non-adherance in adolescent transplant recipients - Aujoulat.pdf.pdf (215.5 kB)
Outcome after transfer to adult care unit - single centre experience - Clermont.pdf.pdf (1,021.7 kB)
Painful procedures - helping children cope - MacKinlay.pdf.pdf (285.6 kB)
Pain Passport - Kalisvaart.pdf.pdf (796.3 kB)
Quality of life in children on cRRT in the Netherlands and Belgium - Tromp.pdf.pdf (639.0 kB)
Quality of life of children with CKD - Maxwell.pdf.pdf (810.7 kB)
Presentations and Programme 2008 - London
Below you can download the programme and presentations given at the 2008 conference in London. Anti-Discriminatory Social Work Practice - Strumm.pdf (262.3 kB)
Business meeting - Reichwald.pdf (409.2 kB)
Dialysis through the Telephone-the True Polle syndrome - Lennert.pdf (699.4 kB)
Enabling social inclusion in school after transplantation - Schnarwyler.pdf (768.5 kB)
Impact of Dialysis on childrens time - Alton.pdf (844.7 kB)
Improving young adult services - Gill, Taylor, Walsh.pdf (1,229.4 kB)
Individual Transition Plans - MacKinlay.pdf (1,705.9 kB)
It’s Not Only Adolescents Who Are Non-Adherent - Batte.pdf (64.0 kB)
Patient loses 4th transplant-what next - Lehnhardt.pdf (91.6 kB)
Program complete.pdf (60.8 kB)
Psychosocial Dilemmas in Live-Related Donation - Donno and Down.pdf (178.8 kB)
Quality of Life of children with renal failure - Maxwell and MacKinlay.pdf (1,412.7 kB)
Rights and advocacy - Cyril Chantler.pdf (86.0 kB)
Spiritual Cultural and Religious Health Care - Holborn.pdf (158.8 kB)
The challenges of palliative care - Steward and Christian.pdf (138.5 kB)
To test or not to test - Flinter.pdf (1,119.5 kB)
Transfer coaching for adolescents with ESRD - Offner.pdf (1,052.0 kB)