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References (not updated!)

Psychosocial Care in Pediatric Nephrology

This is a new service for the ewopa-homepage user. From today we shall continuously present new publications (books reviews, and other articles published in scientific journals at this place. We start with a small selection emerged from a book-chapter which has been written recently. We hope to see the list grow soon!

Therefore we emphatically invite everybody to send us further publications - actual ones as well as from recent years - which might be of interest for psychosocial care in the field of pediatric nephrology (info@ewopa-renalchild.de). Every publication suitable will be integrated in the list below. 

Arbeitsgruppe Psychologisch-Pädiatrische Nephrologie der Universitäts-Kinderkliniken Münster und Heidelberg (1982)
Psychosoziale Betreuung chronisch nierenkranker Kinder und Jugendlicher
Bad Homburg: Fresenius

Bennett, D.H. , Beldon, B.D., Snethen, J. & Warady, B. (1988)
Psychological adjustment of children on peritoneal dialysis or post renal transplant and summer camp
Peritoneal dialysis international, 8, 66.

Berg, J.S. , Dischler, J., Wagner, D.J., Raia, J.J. & Palmer-Shevlin, N. (1993)
Medication compliance: A healthcare problem
Annuals of Phamacotherapy, 27, 3-19.

Cameron, J.S. (1985)
The continued care of pediatric patients with renal disease into adult life
American Journal of Kidney Disease, 2, 91-95

Cameron, J.S. (2001)
The continued care of children with renal disease into adult life.
Pediatr. Nephrol., 16, 680-685

Ehrich, J.H.H , & Wolff, G. (1998)
Renal transplantation in children with Down syndrome.
Pediatric Transplantation 2, 182-184.

Ehrich, J.H.H. , Rizzoni, G., Broyer, M., Brunner, F.P., Brynger, H., Fassbinder, W., Geerlings, W., Selwood, N.H., Tufveson, G. & Wing, A.J. (1992)
Rehabilitation of young adults during renal replacement therapy in Europe. 2. Schooling, employment and social situation.
Nephrology Dialysis Transplantation 7, 579-586

Ettenger, R.B. , Rosenthal, J.T., Mrik, J.L., Malekzadeh, M., Forsythe, S.B., Kamil, E.S., Salusky, I.B. & Fine, R.N. (1991)
Improved cadaveric renal transplant outcome in children
Pediatric Nephrology 5, 137-142

Fawcett, J. (1995)
Compliance: definitions and key issues.
Journal of clinical psychiatry 56, Suppl. 1, 4-10.

Groothoff, J.W. , Grootenhuis, M.A., Offringa, M., Gruppen, M.P., von der Kar, N.J., Wolff, E.D., Lilien, M.R.& Heymans, H.S.A. (2002)
Impaired cognition and schooling in adults with end-stage renal disease since childhood.
Pediatric Nephrology 17, C 125.

Grupe, W.E. , Greifer, I., Greenspan, S.I., Leavitt, L.A. & Wolff, G. (1986)
Psychosocial development in children with chronic renal insufficiency.
American Journal of Kidney Disease 7(4), 324-328.

Klee, K.M.
Benefits of a mainstreamed summer camp experience for teens with ESRD
Advances in Peritoneal Dialysis 8, 423-425.

Korsch, B.M , Fine, R.N., Gruskin, C.H. & Negrete, V.E. (1971)
Experiences with children and their families during extended hemodialysis and kidney transplantation
Pediatric Clinics of North America 18, 625-627.

Kurtin, P.S. , Landgraf, J.M. & Abetz, L. (1994)
Patient-based health status measurements in pediatric dialysis. Expanding the assessment of outcome
American Journal of Kidney Diseases 24 (2), 376-382

Kärrfelt, H.M. , Berg, U.B. & Lindblad, F.I.
Renal transplantation in children: psychological and donation-related aspects from the parental perspective
Nephrology Dialysis Transplantation 4, 305-312

Métry, J.M , & Meyer, U.A. (Eds.) (1999)
Drug regime compliance
Issues in Clinical trials and patient management Chichester, New York, Weinheim, Brisbane: Wiley
Oomen A.J.M , Maassen, B.A.M, Sondaar, M., Monnens, L.A.H, Cornelissen, E.A.M., Groothoff, J.W., Lilien, M.L., Wolff, G. & Hulstijn-Dirkmaat, G.M. ()
Cognitive functioning of school-aged dialysis patients and effects of educational intervention
Submitted for publication.

Postlethwaite, R. J. , Garralda, M.E., Reynolds, J. M. & Morton, M. (1991)
Psychosocial adjustment to end-stage renal failure
Pediatric Nephrology 5(5), 612-616.

Reichwald-Klugger, E , Bethe, D., Rosenkranz, J., Wuehl, E. & Mehls, O. (2002)
A study on drug compliance in adolescents with chronic renal failure (CRF)
Pediatric Nephrology, 17, C 125.

Reichwald-Klugger, E. (2001)
Satisfaction in life of adult patients having suffered from chronic renal failure (CRF) since childhood
Pediatric Nephrology, 16, C19-C198, C161.

Reichwald-Klugger, E. , Rosenkranz, J. & Mehls, O. (1998)
End stage renal disease and mental disability
Pediatric Nephrology, 12, C196

Reichwald-Klugger, E. , Rosenkranz, J., Penitzka, S., Wiesel, M. & Mehls, O. (1997)
Living donor transplantation - The neglected donor
Pediatric Nephrology, 11, C17.

Reichwald-Klugger, E. , Weck, K., Korn, R., Bonzel, K.E. & Schärer, K. (1986)
Psychosocial adaptation of children and their parents to hospital and home hemodialysis
Nephrology Dialysis Transplantation, 15, 453-459.

Reynolds, R.J. , Morton, M., Garralda, M.E., Postlethwaite, R.J. & Groh, D. (1993)
Psychosocial adjustment of adult survivors of a paediatric dialysis and transplant programme
Archives of disease in Childhood, 68, 104-110.

Riano-Galan, I. , & Malaga-Guerrero, S. (1998)
A survey of the inclusion criteria in pediatric dialysis and transplantation programms in terminal renal failure
Anales Espanoles de Pediatria, 48, 33-38

Roberson, M.H.B. (1992)
The meaning of compliance: patient perspectives
Qualitative Health Research 2, 7-26


Rosenkranz, J. , Reichwald-Klugger, E. , Oh, J., Turzer, M., Mehls, O., Schaefer, F. (2005)
Psychosocial rehabilitation and satisfaction with life in adults with childhood-onset of end-stage renal disease.
Pediatric Nephrology, 20, 1288-94


Rosenkranz, J. , & Reichwald-Klugger, E. (2000)
Psychosoziale Rehabilitation chronisch nierenkranker Kinder und Jugendlicher in Deutschland - Eine Verlaufsstudie
Monatsschrift für Kinderheilkunde, 2, 202-203

Rosenkranz, J. , Reichwald-Klugger, E., Schärer, K. & Mehls, O. (1995)
25th Annual Conference of the European Working Group on Psychosocial Aspects of Children with Chronic Renal Failure (Conference report)
Pediatric Nephrology, 9, 123.


Rosenkranz, J., Bonzel, K.E., Bulla, M., Michalk, D., Offner, G. Reichwald-Klugger, E., Schärer, K. (1992)
Psychosocial adaptation of children and adolescents with chronic renal failure.
Pediatric Nephrology, 6, 459-63


Roter, D.L. , Hall, J.A., Merisca, R., Nordstrom, B., Cretin, D. & Swarstad, B. (1998)
Effectiveness of interventions to improve patient compliance. A meta-analysis.
A meta-analysis. Medical care, 36, 1138-1161.

Warady, B.A. (1994)
Therapeutic camping for children with end-stage renal disease
Pediatric Nephrology, 8, 387-390.

Watson, A.R. , & Shooter, M. (1996)
Transitioning adolescents from pediatric to adult dialysis units
Advances in Peritoneal Dialysis, 12, 179-178.

Watson, A.R. (2000)
Non-compliance and transfer from pediatric to adult transplant unit.
Pediatric Nephrology, 14, 469-472.

Wolff, G. , & Ehrich J.H.H. (1993)
Psychosocial impact of transplantation in children
In M. Broyer (Ed.), Transplantation. (pp. 1087-1100). London: Tindall-Baillere.

Wolff, G. , Strecker, K., Vester, U., Latta, K. & Ehrich, J.H.H. (1998)
Non-compliance following renal transplantation in children and adolescents
Pediatric Nephrology, 12, 703-708.